Patients

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  1. Mari Carmen’s story: “I advise family unity when supporting a loved one who has ALS”

    Mari Carmen is the older sister of patient Juan Manuel, she takes care of her brother along with his wife. He was diagnosed with ALS in February 2020 and since then he has followed a clinical trial that includes Ketas (Ibudilast) which is not yet approved in Spain, where Juan Manuel lives.

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  2. Mislav’s Story: “The more time I have, the higher the chance that some new more effective drug will be developed”

    Mislav was diagnosed with Grade II astrocytoma, a type of brain tumour, in 2018 and has struggled with the Croatian healthcare system to obtain a treatment, Fycompa, which was not approved in Croatia. TheSocialMedwork was able to help him access the medicine and he is now one of the patients that we are happy to not have anymore: the hospital where he is being treated has approved the import and treatment of Fycompa to him for free.

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  3. Marcus’ Story: “Maybe if we can explain the future, it will help someone create the future”

    Marcus was diagnosed with amyotrophic lateral sclerosis (ALS) in 2016. For the past four years he has been committed to raising awareness about the underfunded disease and the path to finding a cure.

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  4. How we safely transport your medicines: An interview with our logistics team

    Our logistics team is responsible for delivering medicines to patients anywhere they may be. Every medicine is treated with extra care to ensure its safe and timely delivery.

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  5. Spotlight on the Patient Support Team: Assisting patients from all over the world

    When our patients submit an inquiry for a medicine, they are then personally contacted by one of our Patient Support team members who assist them through the entire process of ordering, sourcing and delivering their medicines.

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  6. TheSocialMedwork commitment during the COVID-19 outbreak

    Here are some frequently asked questions and answers that touch on important COVID-19 related updates.

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  7. Medicine pricing explained

    After submitting a request and receiving a quote from our Patient Support Team, patients often have many questions regarding the price that they receive. In this article, you can find a breakdown of the total cost of a medicine we are supporting you to access in addition to resources on how you can possibly get it reimbursed.

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  8. An easy prescription guideline

    In order to help you expedite the request process with us, we put together a quick prescription guideline.

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  9. How to spot a scam website

    As a pioneer of a completely new type of global service, we understand that trust, security and credibility are paramount–especially when paying for medicines which are essential and often the only treatment option available. There are an increasing number of scam websites and we ourselves have been the subject of one such scam. In this article we’ll give you tips on how to spot these fakers.

    online scam

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  10. Matt's story: I'm doing fine

    I’m lucky. It's been 4 years since the first MND symptoms, only my voice has been impacted.

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  11. David's story: Nothing to lose

    Two and a half years after his diagnosis, David found a medicine with off-label application for MND.

    david 2x

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  12. Fiona's story: PBC, my mother and me

    fiona 2xAfter 40 years with primary biliary cholangitis, Fiona's mother is still alive thanks to her daughter's dedication and a liver transplant.

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  13. Marc's story: A brief look at life with ALS in the US

    After 3 years of living with ALS, Marc found a new medicine on the other side of the world. 

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  14. Mark & Dee's story: For better, not worse

    With tears, laughter and hope, Mark and his family find their own way to cope with ALS.

    mark and dee 2x

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  15. Peter's story: Life goes on

    Diagnosed with ALS only 6 months ago, Peter went against the current to find more options to treat his disease.

    peter golfing close

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  16. Bakr's story: living with ALS in the UAE

    Still walking and talking after 4 years with ALS: we share Bakr's experience of living with a rare disease in the UAE to further his goal of creating awareness and to connect with other ALS patients.

    bakr and wife daad blue sides

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  17. Fact Sheet for Healthcare Professionals

    Downloadable fact sheet answering the most common question TheSocialMedwork asked by healthcare providers.

    doctor ok sign

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  18. I love someone who is rare

    In recognition of Rare Disease Day, our colleague, Sera, shares her story of her dad's fight with Multiple System Atrophy (MSA). 

    rare patient with heart

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  19. Teresa's story: how ALS changed my life

    Teresa's husband was diagnosed with ALS. She spent 11 years as his caregiver and discusses her experiences.

    teresa: caregiver story

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  20. 5 simple tips for a good start to 2019

    Realistic new year's resolutions for lasting results!

    holding calendar clipboard

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  21. Supporting the Named Patient: Healthcare professionals

    Doctors hold the key to access new medicines.

    doctor and patient

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  22. Supporting the Named Patient: How we do it

    How we find and ship medicines on behalf of patients.

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  23. Alexandra's story

    Alexandra was lucky enough to be on a clinical trial of the new migraine treatment erenumab (Aimovig) but couldn't access the medicine afterwards until she found TheSocialMedwork.

    Alexandra

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  24. Zoran's story

    This is a personal account of Zoran, a client of TheSocialMedwork's who made it his life to help raise awareness of amyotrophic lateral sclerosis (ALS) in Bosnia after his own diagnosis.

    Zoran Image

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  25. What happens between availability and approval of medicines?

    TimeUnderstand why approval doesn’t necessarily mean availability and what you can do if a medicine is approved, but not available in your country.

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  26. A cup of strawberries a day keeps the doctor away?

    New research shows the benefit of eating fresh fruit on colon diseases like IBD.

    News

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  27. Cristina's story

    "I heard by chance about a new clinical trial for migraine (for the substance that would become Aimovig) on the radio and the doctor encouraged patients to write to him to see if they were eligible candidates. So I did write and they accepted me for the trial. This trial was going to be 18 months long."

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  28. 10 important facts to know about the new migraine injection

    You might have heard about a new medicine that’s just been approved to treat migraine. Here’s what you need to know.

    Glasses

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  29. Michel's story

    Michel has chronic migraine and shares his experiences seeking a treatment that works and his advice for other migraineurs. Image: stock - Michel wishes to remain anonymous.  

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  30. What is ‘cold chain’ delivery?

    Find out about what it means to order and receive temperature-controlled medicines.

    Map

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